(2017) Living with a Partner Who has ME/CFS and Fibromyalgia, Part 1: When Your Wife is Ill

Hi I'm from the uk. Thank you for sharing your understandings. I'm a single mother of 3, I have my kids to help me. I have to think all of the time about what I need to do today. Paying bills, washing machine, dishwasher etc. I only dream to have someone who can help mentally physically and emotionally. You are great men, but also very strong emotionally. A lot of the time men just don't want to understand your erraticness or stress or even understand why are you say things because you don't understand. Stress is a killer whilst having cfs. Thanks guys can't wait for another video on how your partner has cfs, how it has effected you socially. The relationship with family and friends. Do they really understand Much love ❤️

Sadly for me the sound is often both muted and not very sharp at the beginning. Thanks for fixing it about 25 minutes in.

This is a very important video and I am so glad it is now audible.

I loved listening to these men. I grew up in a home where my father worked, but he was the working disabled. He shouldn't have worked. He spent most of his time off of work in bed not well. He also nearly died twice as I was growing up. And so I got to see my mother model how to go on loving a man who was not well. She didn't bemoan her life. My father was not his illness. I saw her take things in stride.

It was difficult for me to become disabled with ME/CFS because, while I thought I had found the love of my life, my love could not cope even though I was the working disabled prior to disability and before we met. I'd already been diagnosed, and my partner was told that when we began dating. But I guess the reality of disability is harder than the possibility. I do think it comes down to values and what love actually means. And as the one man said, he figured she'd have stayed with him if it happened to him. My ex actually said that when leaving, "Who will take care of me if I get sick." My response was that I hoped that the person I was being left for wouldn't have the same attitude as my partner or the answer would be "nobody."

I nearly cried when the husband talked about finding something funny to watch to help them cope. My ex-partner swore off watching movies on Netflix when a character died in a comedy. And so one of the few things I could do with my partner--watch a movie--was taken away.

And I agree about finding support. I encouraged my partner to get support; however, what happens to a lot of people with ME/CFS is that others are not supportive. It's almost as if they encourage a partner to leave. And that's because so many have believed that ME/CFS is not a real illness. A person with ME/CFS can become a pariah because s/he becomes a real life reminder that a vital person can be struck down. Many people have difficulty coping with a friend becoming ill, particularly when it is so debilitating and chronic.

the first two men come off as patronizing,and laughed at the thought that he needed health issuance for his soon to be wife. That father was lookin out for his dau. that requist wasn't funny

Thank you to everyone of you Heroic Loving Men , I am so grateful for your support and honesty. We are not easy yet we were all Go Getter's, we are all still really appreciative to Real Men with the patience of Job. I have endured this Disease for 12 years and been single for 8 years. Love and Real support are a Healing cocktail. I am having a problem finding anyone in this 21st century dating scene. I am Spiritual and believe anything is possible, I have become afraid that I will ever have Love again. I was hit with this Disease 4 years after all of the kids left the nest. Everyone of your wives are incredibly blessed. We mean well and have an incredible amount of love to give however we are not for everyone. I will say that I have tried to pick up my responsibility when I was in a loving relationship. When we are in Love we will Try so hard to have a balanced relationship. We really appreciate you and we so do not want to be a burden. I was a single mother for years and I believe that really Fried my life. Acceptance happened this year and the Grief of who I was. Living for 12 in silence because many think I have a Mental Illness because I look ok even in bed. I learned quickly not to share my Disability, you can imagine how vunerable I am and also how much I want to have fun. Plans make me really sad because I want to have fun too. Screw dusting instead I have learned that having a loving partner with a bit of a less clean home is amazing. Thank you everyone for giving me hope to meet a very patient and loving man. We are not without worth. No one would have planned this disorder for their lives.

Im crying so hard. My husband does the same for me. Im having a hard time accepting that fibromyalgia has taken my life

no sound!

Try thyroxine treatment 250-300MCG. The debate is still out there whether people with viral onset ME/CFS are hypothyroid or not.

I would love to see when the roles are reversed. Thanks for the video

When Your "Wife" is Ill?? Oh cool now I feel totally discounted... This is NOT solely a female issue folks!! SMH This is one the worst fallacies about ME/CFS and it really annoys me!!

Was disappointed to see only men up there.. my wife has plenty to say about me I’m sure.

Here, let me fix your video title: "Living with a WIFE Who has ME/CFS and Fibromyalgia". You're welcome.

Most precious beautiful examples of the divine masculine bless you all and may God 🙏 bless us all with gift of awareness that causes these karmas in both physical and emotional form. Evolution of subconscious and conscious past present and future of the evolved God cell of unlimited ability.

Superman s 🦸‍♀️ other powers.

I appreciate the guy who was explaining how to deal with his daughter when his wife is ill. I have 2 small kids & I feel awful sometimes when I can't keep up with everything they want me to do with them.

Check copper metabolism genes.

Its a good thing to hear from men in caring positions but I look forward to the day that men don't need chore lists and continued instruction on how to do basic housework. Most of their wives are still doing all the prep and planning and house management while managing their own illness.