Multiple Sclerosis Vlog: Must we treat MS? What about Mild MS?

Multiple Sclerosis Vlog: Must we treat MS? What about Mild MS?

Aaron Boster MD

5 лет назад

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@amyswartley2201
@amyswartley2201 - 05.07.2019 14:48

Thank you Dr. Booster! I have RL/RM MS. Currently on Copaxone. I am noticing that I am falling more and I am not able to walk any great lengths anymore. Is this and indicator of an attack?

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@johnscapino5374
@johnscapino5374 - 05.07.2019 14:55

Very well put Dr. Boster.
I hope that you had an awesome 4th.

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@EvenSoItIsWell
@EvenSoItIsWell - 05.07.2019 14:57

Thanks Dr. B. I was one of those that was hesitant and afraid of treatment in the beginning. I appreciate your insight and sharing your professional opinions with us!

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@ccgt6667
@ccgt6667 - 05.07.2019 15:03

I have a silly question. Is there a way to track down the time when one started having MS? Yes. I refer to the time when sequels were not so obvius. Are we born with this condition or do we "develop" it? 🤔

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@SiansCraftyCorner
@SiansCraftyCorner - 05.07.2019 15:22

Wow. I'm currently under investigation for Ms following optic neuritus and trigeminal neuralgia in the past 6 months as well as facial "buzzing" and fatigue. I've been questioning if they say it is then what do I do so thank you for the insight on treatment.

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@jason0998
@jason0998 - 05.07.2019 15:33

Thanks Dr. B. I have a question, I heard Ocrevus continues to work even after you stop the drug. Is this accurate? Ps. i don’t plan on stopping.

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@marieb9081
@marieb9081 - 05.07.2019 15:40

Another great video, thanks Dr. Boster! I have a question about MRIs...how come MRIs might not show any new lesions but a patient’s symptoms are getting worse?

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@kara7197
@kara7197 - 05.07.2019 15:51

Stop treatment? Then what? Run away from this doc!

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@bigabiga4107
@bigabiga4107 - 05.07.2019 15:52

Are there any instances of tysabri completely and permanently halting RRMS?

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@blubbi2010
@blubbi2010 - 05.07.2019 15:54

As a follow up question to this - when do you start treating patients or phrased differently, when do you consider someone having the dx of MS? Do they have to have lesions? What if the s/s, hx, abnormal neuro exam and abnormal lp (o-bands) point towards the dx, but MRI is normal? Do you treat just the flares until lesions are confirmed on MRI? Thank you.

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@brendapotter5879
@brendapotter5879 - 05.07.2019 16:02

Great video again. I have a question do you give your patients a 5 hour mental test for cog fog?

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@donnaberrios7571
@donnaberrios7571 - 05.07.2019 16:03

Well this is what I think mild is I am perfectly fine in every way you mentioned nothing is wrong except my one leg that gives me trouble walking I have taken mris 5 yearS in a row and nothing has changed they come back exactly the same I have no lesions in my brain just 1 in the spine my doctor said why would I give you medicine to stop the progressing of the disease if it is not progressing that made sense to me what are your thoughts thansk

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@j.svensson7652
@j.svensson7652 - 05.07.2019 16:26

The last neuro I saw first said I didn't have ANYTHING wrong only to turn around three days later and say Yes I did have it "You have lesions on your cervical spine" but "I don't want you on medication because it is so mild." 3 months later he went back to the "You're 100% fine and I will refuse to see you again." Things have been shifting slowly here but I see changes. I'm so distrusting of neurologists (two have just been horrid) that at 62 I just don't know what to do. I don't feel well most of the time but I'm so tired of being called a hypochondriac or treated like an alcoholic baglady (I never ever drink). Any advice? I'm on medicaid so I'm at the mercy of the system.

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@cementra2007
@cementra2007 - 05.07.2019 16:42

Thanks Dr. Boster. Have a good weekend.

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@Jerusalem_Warrior
@Jerusalem_Warrior - 05.07.2019 16:47

Right on. Shabbat Shalom from Jerusalem. 🕯️

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@JaredHelsin
@JaredHelsin - 05.07.2019 18:08

I consider my MS benign after taking some multivit. And as long as my condition improves I have no interest in dmts.

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@colleencalvert8867
@colleencalvert8867 - 05.07.2019 18:44

The first neurologist I saw told me that the spots on my MRI are irrelevant and I did not need to be treated for MS.

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@kyzone
@kyzone - 05.07.2019 18:56

I did an MRI, they found a white spot in my brain. I have symptoms since 2012 and the doctor said "for the moment just forget about it, in the worst case scenario you have a very mild MS, otherwise since 2012 you should feel a way more bad" ... How can you left the consultant studio whit such a big question? I have MS or not? What mild it means? Why he didn't ordered some other test or put me on medication??? I think it's quite frustrating!

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@mikeecko
@mikeecko - 05.07.2019 18:58

Thank you Dr. B!! Keep filling our heads with your knowledge

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@tigerlily8112
@tigerlily8112 - 05.07.2019 20:19

Are MS panels considered highly accurate?

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@doctorken2k
@doctorken2k - 05.07.2019 20:31

I wish I could visited you Aaron a long time ago.

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@modestinacolecchia8671
@modestinacolecchia8671 - 05.07.2019 23:21

Thanks Doc, great video. Fifteen years ago I had only 3 lesions and the radiologist said to me to run away from neurologist because "they put everyone in therapy". Today my brain and spinal cord are full of lesions but thanks God I still walk and go on with my life! I started my therapy too late. Please treat your Ms as soon as possible!

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@elenastrong6027
@elenastrong6027 - 05.07.2019 23:42

Great video, Dr. B!
I’m too was told that I have a mild MS and was put on Tecfidera.
2 weeks ago I had an appointment with my neurologist and, thanks to you and your channel, had a conversation about treatment approach. Looks like I’ll be switching to Ocrevus soon.
Thank you

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@АнастасияСмирнова-й9в
@АнастасияСмирнова-й9в - 06.07.2019 00:02

Hello, Dr.Boster, thanks for your work and spreading the knowledge 🙏
I have a question about Copaxone. I have to face dilemma today. How can I find out that the medicine is no longer efficient for me?I have one new lesion during 6 months period.Should I change my medication? And do new lesions(or its number) mean that the medicine is not effective at all?

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@nswim2754
@nswim2754 - 06.07.2019 00:15

Thank you for all the information.

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@dougtagg9162
@dougtagg9162 - 06.07.2019 00:31

Thank you Doug coffee in hand

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@Turbo-6
@Turbo-6 - 06.07.2019 00:46

Thanks Doc, another great video

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@lw5682
@lw5682 - 06.07.2019 01:10

Some of these comments with doctors that don’t want to treat people who have lesions and think it is “mild MS” are terrifying! For me, my symptoms are gradually worsening as I age, I predict I will be dx with SPMS. I was put on DMTs too late! Just because you feel reasonably okay now, doesn’t mean the disease isn’t active and that you will feel okay 10-15 years from now. I know from experience.

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@lindsayrowell7664
@lindsayrowell7664 - 06.07.2019 01:47

even if i had the most “mild” MS case in history, i would still never stop therapy. i might be totally okay now, but what about 5-10 years in the future? isn’t the idea that we’re on therapy for the future and not necessarily for right now? well that’s how i see it anyway, might not be correct. not a risk i’m willing to take 🙅🏽‍♀️🙅🏽‍♀️🙅🏽‍♀️

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@Sharona811
@Sharona811 - 06.07.2019 01:51

I’m in the UK ...many neurologists here don’t treat “mild” MS. I tried to argue my case but was ignored. I’m seeing a different neuro now. I went from EDSS 1.5 to 6 in just two years with my “mild” MS.
Great video ...I’m sure the more this is talked about, the faster change will happen.

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@theflossi56
@theflossi56 - 06.07.2019 05:27

I’ve been told mine is mild. I do not see where my dr gets that idea. He will stop my tec when I turn 65 in 3 years. I will need to find another dr at that time I’m not taking any chances. I have responsibilities many ppl don’t have I need to stay mobile

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@johnscards4633
@johnscards4633 - 06.07.2019 06:10

I must have benign or mild M.S. because I only get meds twice a year..Rituximab I.V....and i only pee every hour on the hour, my foot is numb and I have no balance, but other than that, I feel greattttt!...*sarcasm*...if I was that person, fire your doctor. Patients have rights.

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@outbackmser4413
@outbackmser4413 - 06.07.2019 08:14

Thank you for another great video Dr B. My question is- would it be appropriate PwMS ask for a full intra cellular vitamin B12 analysis for nutrients in white blood cells, when experiencing symptoms such as fatigue, gait, dizziness, cog fog, strength weakness and other symptoms.Thank you for your teachings, I much appreciate your knowledge sharing.
👏🍮🇦🇺

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@sstojsin
@sstojsin - 06.07.2019 12:20

Doc, stop poking my eye, it is already destroyed by ON. Just kidding, great info video as always. I wish I live in US and you’re my doc.

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@maryedmons3434
@maryedmons3434 - 06.07.2019 13:46

Can someone be diagnosed with MS at 50 years old?

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@eyesonfire4301
@eyesonfire4301 - 07.07.2019 17:02

You rock Doc!! :) Thank you buddy :)

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@thechadder
@thechadder - 07.07.2019 19:02

You mention, in 2019 most neurologists have excepted the fact that all MS should be treated. But say 20 years ago if the norm was to not Treat a specific condition. What is the best way to get with the times? Or would it likely be too late?

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@ShanealiDungersi
@ShanealiDungersi - 07.07.2019 20:33

Thank you for your video. What about patients with CIS- clinically isolated syndrome, should they be put on life long treatment?

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@sandramoyse6100
@sandramoyse6100 - 08.07.2019 21:24

I'm on Avonex and have had no major relapses in 10 yrs. I continue on it because I believe if it ain't broke, don't fix it!

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@tamara401
@tamara401 - 12.08.2019 05:12

Can you please do a video talking about disability in ms . Does ms have to end up with disability?? Why bother with meds if I’m gonna be unable to walk no matter what I do..

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@gabes738
@gabes738 - 03.01.2020 09:29

Awesome like always, good information.

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@rebecaapf754
@rebecaapf754 - 29.08.2020 14:31

I do haveild or benign ms
... been having it for about 10 years .. only two attacks and in remission for the last two years.. no medication except for cortison Therapie ONCE

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@kaylagee1701
@kaylagee1701 - 23.09.2020 21:52

Can you do a video on cis is what Being told that have right now.

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@michelleburns168
@michelleburns168 - 07.12.2020 18:35

How do I talk to you?

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@ELZ_12
@ELZ_12 - 12.08.2021 00:38

Your brilliant I've got ms but doctors investigating further to see what one I have I've had deeper MRI get results back next Thursday .

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@stephaniekn.565
@stephaniekn.565 - 31.05.2022 18:34

Love what you do for us. I learn something every time.

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@youtubeuser6418
@youtubeuser6418 - 15.08.2023 06:03

My sister in law just received a diagnosis. They feel she's had it for 33 years!!!! Only thing she got was trouble with her bladder a few years ago which has been controlled with diet changes. Recently her leg has weakened and she requires a cane, that's what finally got her diagnosed at the Mayo clinic! She will now start treatment. She was blessed to have a wonderful enjoyable life never knowing she had Ms!!!

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@Nancy-dz1vo
@Nancy-dz1vo - 21.04.2024 18:31

You are so awesome with your caring knowledge. Thank you ❤️

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@dianegonzalez4748
@dianegonzalez4748 - 05.07.2019 14:59

Great question!! Your wow response 😂😂That play it down response is common among general physicians. MILD symptoms and occurrences mimic other diseases. This leads to we think, we don't know , Lets try this and that. A hamster wheel exsistance for years .

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